I’ve been out of the hospital now for a few months with only few incidents where I had to stay a few nights. I try to avoid that place at all cost, even to the extent of faking my wellness. I just can’t stand the thought of being stuck in there again. I am really enjoying my freedom right now doing everything I probably shouldn’t including venturing out on my own, driving, etc.. I guess thats why I haven’t blogged much lately. It’s time to get back to it, I don’t want anyone thinking I died already haha, I’m still kicking!
God is really good to me, He’s answered all my prayers. So much has happened since my last post. I’ve had a lot of ups and downs, mostly health complications but the bone marrow side of things has gone extremely smooth. I couldn’t be more thankful. I’ve met people that have had it way worse than me and some that sailed out smooth.
The most notable would be my first post transplant biopsy I had about 6 weeks ago. It came back clear of cancer, and 100% donor cells. Praise God for that. Since release I had been fighting RSV, fungal pneumonia, and a bacterial buildup in my lungs. At the time my lungs were so full of junk I had to be put on oxygen. Eventually I developed Subcutaneous Crepitus. Its basically trapped air from my lungs that escaped into the surrounding tissue. It ended up behind my lungs, around spine, heart, neck, and skull. It even changed my voice for a long time, I couldn’t speak well. They found it when they did a CT scan of my chest and neck. The radiologist wouldn’t let me leave after they did the scan and wouldn’t say why. Later I found out that she had never seen so much air she was amazed I was alive. The doctors didn’t know what to do, they called in a pulmonary surgeon to possibly perform an operation. They gave me a pretty good scare, I prayed hard. When I consulted with the surgeon he said it was not life threatening and I could be released, it would naturally dissipate. Its been a few months since then and I feel most of the air has gone. I also cleared the RSV a few months ago, not sure about the other.
I’ve lost a lot of weight since transplant. There was a time I was down to 158lbs. My appetite is decent but I can’t seem to gain much. When I was released I was about 170lbs or so. I was also extremely weak. Walking up the stairs was really hard, I needed to pull myself up using the banister and both arms. It seemed like every time I was re-admitted to the hospital for some infection I would be weaker on release than I was when I got in. I came to really despise staying there.
God has given me the strength to deal with some pretty serious stuff outside the hospital and I couldn’t be more thankful for that.